Amy Jean was my older sister. She was born on October 3rd to my parents in Las Vegas while my dad was still in the Air Force and they lived on the base there. One year, ten months, one week, eight hours and thirty two minutes later (I know, pretty sad that I know that,) I was born. Amy was the oldest of a family of what turned out to be six children, three boys and three girls. Because Amy and I were close to each other in age and were followed by two boys before another sister came along (then a final brother), we were pretty close. But we were very different from each other. We shared bunk beds in a room together until she went off to college. I remember sitting and talking to her at night. She was a slow person; meaning she didn't rush anything. She ate slowly and savored her food, she walked slowly and enjoyed the view. She appreciated things. I used to eat all my Halloween candy in a week and she would save hers all year long. Yes, I was a bad sister and would eat some of her Halloween candy from time to time.
Amy was always a very responsible person. After our parents divorced and mom had to go back to work full time, she became a second mother to us all. She would put us to bed and sing to us and take us on the bedtime train over the rainbow where she would ask us what kinds of things we would see and we'd describe sights or animals we could see from up on top of the rainbow. She was a peacemaker and would try to solve fights. Since me and my younger brother Mike fought like cats and dogs all the time, it was quite a challenge. Amy was artistic and very talented. She started drawing in childhood and developed this talent well over time. She would think up stories and tell them to us or write them down an illustrate them also. She got glasses in kindergarten and it wasn't until high school, I think, that she replaced what were then glasses of coke bottle thickness for hard contacts. Amy got braces in her teens. Honestly, she was a bit of a nerd, but was so extremely nice and loving to everyone that she was very highly regarded by everyone who knew her. She was also very smart. She got good grades and was a sterling scholar in high school. She was, however, very uncoordinated athletically and never played sports, at least not well. She was musical and learned to play piano and was in the high school Madrigal singing group her senior year. In her junior year of high school she was chosen to play Oliver in that year's musical 'Oliver'. She cut her long hair for the role and had an extremely fun time with the new experience of acting. Amy developed her drawing even more in high school and started to work with watercolor and oil painting as well (she didn't care for the oil painting quite as much). Amy was also a poet. This was something I never knew until we found her poems while going through her stuff after she died.
Amy went to Utah State University after high school. While she was going there one of her best friends set her up with Reed. I believe their first date was going sledding and Amy lost her temple recommend which was in her pocket (by the way, this is the same friend who set Lyle and I up on our first date!). Reed found it and held it ransom for another date. Reed was then going to BYU and he would go all the way up to Logan to take her out. They dated and ended up getting married when Amy was 19 years old. Amy ended up later transferring to BYU where she finished her degree in Elementary Education. A week before Amy and Reed got married they found a small tumor on her bladder and she had surgery. They biopsied it but the results were inconclusive. Amy and Reed moved to the U of U housing for married couples (Reed had transferred there). Two years after they got married they had their only child.
I happened to be in the delivery room with Amy and held her hand while she breathed through her contractions. She chose the name Joshua Reed for their son. There was a very special spirit in the room when Josh was born.
During her student teaching at the end of her schooling Amy noticed she had started to feel very tired and wasn't sure what it was. They were trying to get pregnant with child number two and she thought maybe that was it. Around this time, Amy first felt a hard lump in her abdomen. She went to the doctor who didn't like the way it felt. They ended up doing a cat scan which showed a baseball sized tumor attached to her stomach and multiple little tumors all throughout her liver. She was 22 when she was diagnosed with Leiomyosarcoma (a soft tissue cancer of the abdomen). Later we ended up finding out that her cancer was more like a branch off of Leiomyosarcoma and it was rare enough that they didn't even have a name for it, so we ended up referring to her cancer as a G.I. Stromal tumor which was the gastroinestinal tumor they found on the outside of her stomach which then metastasized into her liver. They operated and took out the tumor on her stomach and now they had to treat the tumors in her liver.
Amy went through chemotherapy and her hair fell out. It didn't get rid of the cancer but it stalled it from growing for a while. But eventually it started growing again. Her abdomen got bigger and they tried another medication which didn't kill the cancer either. During this time Reed threw himself into research. He took her to Boston to see the leading doctor on Leimyosarcoma in the country and to a clinic in Houston which was the best overall clinic in the country for her kind of cancer. Eventually they found an experimental medication that Amy didn't qualify for as an applicant in the study but they gave it to her anyway for what they deemed 'compassionate use'. Amy and Reed went to Portland and stayed with an aunt and uncle for a month while Amy took this new drug which has since been approved by the FDA. This medication had a dramatic effect in some people in the study, reducing their Leiomyosarcoma. It didn't do anything to Amy's unfortunately. But it did make her feel better than she had felt for most of the time she'd been sick. She was able to do things like take a family vacation to Disneyland and spend some quality time with her husband and son.
One of the weird things about Amy's cancer was that it seemed to feed on her blood. She would have to get transfusions often because her blood was disappearing. The doctors surgically inserted a port below Amy's skin which fed directly into the arteries by her heart so they could quickly inject any medications into the port instead of being stuck with needles so often. That wasn't the only blood problem she had. Because the chemotherapy had killed all of the platelets in her blood, if she got something as simple as a nosebleed she would have to go to the emergency room because she wouldn't stop bleeding and had to had medical intervention to get the bleeding to cease. Her liver had been growing and she now looked 8 months pregnant (which was all cancer) and the disease had come back in her stomach again as well. But this time the cancer tissue in the stomach integrated with the good tissue so there was nothing they could do to get rid of it. It gave her horrid acid reflux which resulted in her losing her voice for a couple of months. It also made eating extremely hard for her so she had a feeding tube inserted which attached to her colon and she would be feed Ensure at night so she could survive.
Amy was the most Christlike person I knew. And though she had a horrible disease that was taking her life, she was positive and had an immense amount of faith and hope. She was a very compassionate person and was always looking for how she could help other people. She served on the Relief Society Presidency in her ward as the secretary during her illness. She struggled with the fact that she'd have no more children even if she survived the cancer and I certainly feel close to her now knowing how horrid that is all in itself. She enjoyed being with family and friends and I remember she and I taking a blind friend bowling (incidentally even though Julia couldn't see the pins, we would tell her where they are and she'd throw the ball; she creamed us every time!). I used to stop by Amy's house after work and spend time with her just talking or doing stuff with Josh. We had some very special times together.
Twice Amy was hospitalized and kept in the ICU because the cancer in her stomach burst blood vessels and she would throw up extreme amounts of blood. The first time she ended up coming home after a week or so. The second time, after 2 days, 100 pints of blood transfused into her, multiple endoscopies to find where she was bleeding from and some cauterizing of the places they could find, the doctors finally couldn't do anything more and took her off of all blood products. Two days later, after bleeding into her abdomen continually, her kidneys and finally her lungs shut down and with her family surrounding her she died on a Sunday morning, which we felt was very appropriate. The very same spirit which had been in the room when she gave birth to Josh was there when she died and it was a very sacred moment for those of us who were there to witness it. She was 25. Her son was 4 1/2 years old and she died 5 days before her and Reed's 6th wedding anniversary. Though it was June, it snowed lightly on the morning of her funeral. It turned to freezing rain and while we were at the graveside and singing Abide With Me 'Tis Eventide, the clouds parted and the sun shone down on us and we knew she was there watching us and she was okay.
That was almost 12 years ago. It's funny how time goes by. Losing someone you love so much is horrible but I have learned to trust in my Heavenly Father and gained a deep, personal relationship with my Savior which has been drastically influenced by Amy's death. I wish so much that I could share my life with her. If I live a long life, most of it will have been lived without Amy. She was someone I knew loved me, even when I didn't deserve it. I will miss her every day and the influence she's had on my life will never go away. She made me want to be a better person, just by knowing her. Don't get me wrong, she wasn't perfect. There were times she was a tad judgmental or self-righteous, but by far she was someone I am still proud to call my sister and I can't wait to see her again someday! I love Easter time. It reminds me of the resurrection and the fact that someday Amy will have a perfectly functioning body and she'll never die again! So here's to the memory of my courageous sister. I love you, Amy.
Things Amy Liked:
Mushrooms
Singing
Poetry
Being outside
Nature (she LOVED sunsets, flowers, starry nights, etc)
Being with her friends
Going on dates with her husband
Playing with Josh
Things Amy Didn't Like:
Marshmallows
Gummy anything
Conflicts
Being asked when she was due to have her second baby
Feeling sorry for herself
Here's some samples of Amy's artwork:
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This is my grandparents. Amy created this picture out of two separate photographs taken of them when they were younger. |
Here's some samples of Amy's poetry:
Through the Tempest
Slipping-
The cancer grows,
No doctor knows
Just what to do for me.
Searching-
So many ways,
But will my days
Still fly like angels free?
Holding-
Your eyes embrace
A peaceful place
A vast, eternal sea;
Smiling-
Love knows no bounds-
Here's solid ground
Where we can always be.
Evening Poem
A longing pulls my heart
As the dusk filters out from the leaves to settle on the horizon
A golden crown
To bury itself against my chest
And drops of blue to smile up at me in simple wonder,
Tiny hands
That pull and reach are resting on someone else's lap now,
The light fades, the air rests.
As night falls, I miss my baby.
Untitled
I wish I could eat yellow roses
long after their luster has passed;
I have inhaled their buttery petals
and adore the aroma they cast.
I hope that, as onward I travel
I can service each person I find;
To bring a cheer like yellow roses,
and leave a sweet smell in their mind.
Nightmare
Locked in a cell
of the prison of Hell,
No chance of escape-
though my cause is so just.
When a sliver of knowledge
drops to my feet
And I find myself running
through dark and light halls,
Collecting friends all
(of flesh and of stone)
While dodging the guards
throwing fiery bone.
One is a sister,
one a lost cousin
Who brought a few friends
from his wilder days,
As I look at the jumble,
I inwardly moan-
If I help their escape,
will I forfeit my own?
And yet we press on,
through the wild stony mess,
To right the world's wrongs
With a prayer and a guess.
Untitled
There's a feeling I can't quite explain,
That I can't just dismiss or disdain
Like a bird in the night,
Or the last star in sight,
It goes on when my search seems in vain.
Though there's no one around me to say
That it's going to turn out this way,
Still it calls out so strong
Tell me, do I belong?
Will you give me the blessing to stay?
Another day?
Take my hand- for a lifetime
Keep my dreams next to yours to remain
And we'll work with our might
With our hope burning bright-
'Till forever is ours to claim
Take my hand- say that you love me
As your best friend and also your wife
And we'll pray with our hearts
That we don't have to part-
And thank God for a beautiful life.
The Ship
Underneath the cloak of heaven,
Yet upon the breast of sea
My ship rises over every wave's crest-
Like a wooden manatee.
My soul is housed within her hull,
My heart beats to the rhyme
Of the wind upon her sails
Which pushes the foamy brine.
My ship has never feared a tempest
An never will be penned-
She knows the way to set her sails
To calm and tame the wind.
And yet- there come those sultry days
When all of nature sleeps,
And my ship sits there in a daze-
Abandoned thus, she weeps!
She has no power in her,
And when all the gales are dead
She has no life to offer
And waits upon her salty bed.
Longing, needing every hour
To feel a breeze caress her sails
And erase the time gone sour
When the summer trade winds failed.
Suddenly, I feel the air lift
And my heart within me sings!
As, once more, my wind will bear me
High as on eagle's wings!